15:15 - 16:00
- Användbarhet / Appar / Dokumentation / Etik / Exempel från verkligheten (goda/dåliga) / Informationssäkerhet / Innovativ/forskning / Juridik / Kommun / Nytta/effekt / Patientsäkerhet / Personcentrering, samverkan över organisationsgränser / Styrning / Test/validering / Uppföljning/Nulägesbeskrivning / Välfärdsutveckling
- Beslutstöd - metoder / graviditet
- Chef/Beslutsfattare / Forskare (även studerande) / Omsorgspersonal / Patientorganisationer/Brukarorganisationer / Politiker / Studerande / Tekniker/IT/Utvecklare / Verksamhetsutveckling / Vårdpersonal
In recent years in some regions, twice as many children have been treated because of ROP. At the same time, Löf (patientförsäkringen) has initiated a study as they have noticed that more infants have become blind due to ROP and that they suspected that the cause could be found in the screening process.
Known shortcomings are that, despite national guidelines, examination results are not recorded in a standardized manner. In addition, results are handled by several categories of staff before being added to the analogue chart. Responsible neonatologists also need access to a standardized documentation of disease development in order not to delay examinations and treatment. We believe the solution is a standardized documentation of disease development implemented in a mobile-health platform, including a digital protocol, remote monitoring and self-management. In the mobile-health platform the doctors will use AI both to predict a) the patient’s ROP score and b) probability of need of laser treatment. The guardians will use their smart mobile phone apps for self-management and to remotely communicate with doctors and nurses.
In practice, the self-management and remote monitoring offers new ways of collaborating based on patient-centered-care. It is a way to continuously follow-up of the infants born very preterm symptoms and treatment effects - at the individual level in real time - against set treatment. The challenges are to develop useful and secure services for different groups related to the mobile-health platform. It involves continuous negotiation with people and organizations concerning how they should and could collaborate. This involves not just healthcare and patients but also patients’ families, EPR Vendors, quality register, researchers and IT industry. The need for the mobile-health platform as a service provided “by one body" has disappeared; today it is a shared platform embedded in the innovative patient and healthcare infrastructure. The mobile-health platform is just a starting point for a novel and limitless AI use as well as remote monitoring and self-management including limitless actors and activities on a national and international level.
The session will include: a) presentation of both the state of the art treatment of ROP and the results from the study, b) a description and a demo the m-health platform applied, and c) a parent's (of an infants born very preterm) description of how she has used the smart phone based app for education and communication with healthcare, also sharing her experience and perception of its use.
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